An online survey about the top priorities for recovery and interest in Spinal Cord Stimulation for people living with SCI (Spinal Cord Injury)

DOI:10.34945/F53889

DATASET CITATION

Thorogood N., Waheed Z., Chernesky J., Burkhart I., Smith J., Sweeney S., Wudlick R., Douglas S., Wang D., Noonan V. (2023) An online survey about the top priorities for recovery and interest in Spinal Cord Stimulation for people living with SCI (Spinal Cord Injury). Open Data Commons for Spinal Cord Injury. ODC-SCI:853 http://doi.org/10.34945/F53889

ABSTRACT

STUDY PURPOSE: To obtain opinions from people living with SCI (Spinal Cord Injury) on the desired outcomes and perceived potential risks of SCS (Spinal Cord Stimulation).

DATA COLLECTED: 223 respondents living with SCI completed the survey. The majority of respondents were male (64%), were 10+ years post-SCI (63%), lived in the United States or Canada (90%) and had a mean age of 50.8 years. Most individuals had a traumatic SCI (81%) and 45% classified themselves as having tetraplegia. The top five desired outcomes of SCS include performing bowel and bladder care; less reliance on caregivers; maintaining physical health; mobility outside of the home and ability to travel. Perceived potential risks include further loss of function; increased neuropathic pain; requiring additional surgery from complications; skin breakdown over the implant; and infection requiring antibiotics. Barriers to participation in SCS clinical trials include inability to relocate, out-of-pocket expenses and awareness of therapy.

CONCLUSIONS: SCS clinical trial design, participant recruitment and translation of the technology can be improved by better understanding the desired outcomes and perceived potential risks for those living with SCI identified from this study.

KEYWORDS

Spinal Cord Injury; Spinal Cord Stimulation; Community Survey; Clinical Trial Design; Risk Tolerance; Community Perspectives; Clinical Research

PROVENANCE / ORIGINATING PUBLICATIONS

RELEVANT LINKS

NOTES

DATASET INFO

Contact: Noonan Vanessa (vnoonan@praxisinstitute.org)

Lab: Praxis Spinal Cord Institute

ODC-SCI Accession:853

Records in Dataset: 231

Fields per Record: 152

Last updated: 2023-05-05

Date published: 2023-05-05

Downloads: 12

Files: 2

LICENSE

Creative Commons Attribution License (CC-BY 4.0)

FUNDING AND ACKNOWLEDGEMENTS

Praxis Spinal Cord Institute , Western Economic Diversification Canada

CONTRIBUTORS

Thorogood, Nancy

Praxis Spinal Cord Institute

Waheed, Zeina

Praxis Spinal Cord Institute

Chernesky, John

Praxis Spinal Cord Institute

Burkhart, Ian

North American Spinal Cord Injury Consortium

Smith, Judith

North American Spinal Cord Injury Consortium

Sweeney, Shannon

North American Spinal Cord Injury Consortium

Wudlick, Rob

North American Spinal Cord Injury Consortium and Department of Rehabilitation Medicine, University of Minnesota

Douglas, Sam

Praxis Spinal Cord Institute

Wang, Di

Praxis Spinal Cord Institute

Noonan, Vanessa

Praxis Spinal Cord Institute