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IMPORTANT UPDATES: Streamlining Data Sharing in SCI Research
- 08:27am March 20, 2025
- 68 views
- Common Data Elements, Community Data Elements, data harmonization, data sharing, FAIR,
Standardized Common Data Elements (CDEs) are transforming the way research data is collected, analyzed, and shared. By adopting CDEs, the research community can ensure data is more accessible, compara...
About
Spinal cord injury (SCI) produces a complex syndrome characterized by loss of motor control and mobility; loss of bladder, bowel and sexual function; pathological pain; and loss of autonomy. The multifaceted nature of SCI presents a challenge for the translational pipeline. This problem of SCI complexity can be conceptualized as a big-data issue: the field needs a forum for large-scale data-sharing and application of advanced analytics to catalyze SCI discoveries. Various funders and publishers have recognized this need as well currently implementing data sharing mandates.
To address this challenge the SCI research community is assembling a large database through collaborative and FAIR data sharing. We are a digital infrastructure with the goal to democratize SCI data, allowing researchers to access existing SCI data, contribute their own, and publish with citable DOI. Learn more
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